Campaign launched to help disabled Sedlescombe man

Louise Wraight launched the fundraising page on Gofundme with the help of Natasha Lampard in a bid to raise money towards a mobility scooter for her 24-year-old son, Lawrence Jordan.

Lawrence, of Sedlescombe, has Ehlers-Danlos syndrome, which is part a group of rare genetic connective tissue disorders.

Symptoms may include loose joints, joint pain, stretchy velvety skin, and abnormal scar formation.

Louise set up the Gofundme page with a target of raising £1,200.

She said: “I am hoping to raise money to purchase a mobility scooter for Lawrence, who suffers with Ehlers-Danlos syndrome, a painful, degenerative condition affecting most of his major joints causing them to dislocate daily. This limits Lawrence’s mobility greatly and we rely on aids to help him.

“Sadly 18 months ago Lawrence’s benefits were stopped and our mobility car taken away.

“After a lengthy appeal we have had the lowest rate of benefit awarded but this does not cover transport, meaning Lawrence is now left very restricted on where he can go.”

Lawrence was diagnosed with Ehlers-Danlos syndrome three years ago.

Ehlers-Danlos syndrome affects at least one in 5,000 people around the world.

The syndromes are named after two physicians, Edvard Ehlers, from Denmark and Henri-Alexandre Danlos, from France, who described them at the turn of the 20th century.

Lawrence also has dyspraxia, a condition causing difficulty in activities requiring coordination and movement.

His mum added: “I would love to be able to purchase a fold-up mobility scooter which I can place in my existing car, giving Lawrence and myself freedom to enjoy life.

“Lightweight scooters are beyond my financial means, as Lawrence’s full-time carer I am restricted on what I can do.”

She would like to thank everyone who has donated and supported her.

Louise said: “It’s really humbling and amazing. I’d also like to thank Natasha for persuading me to go to Gofundme. She has been a great help in getting it going.

“Our GP is also so good as he has worked with patients with Ehlers-Danlos syndrome, is a musculoskeletal expert and is really supportive.”

Anyone wanting to donate can visit uk.gofundme.com/f/wheels-for-lawrence.

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