Fundraising drive for St Leonards baby’s life-changing treatment

Orsolya Botos pictured with Nathan Zentai. SUS-150929-130147001
Orsolya Botos pictured with Nathan Zentai. SUS-150929-130147001

The parents of a child with a rare head condition are raising money for his treatment as it is not funded by the National Health Service.

Nathan Zantai developed flat head syndrome soon after birth and wears a helmet to keep his head in shape.

His parents Orsolya Botos and Istvan Zentai cannot afford the £2,000 private treatment so they have set up a JustGiving page to try and raise funds.

The family are originally from Hungary but now live on Gensing Drive in St Leonards.

Istvan works in a factory and Orsolya is an assistant carer.

She said the doctors could not explain exactly how the 11-month-old boy’s head became deformed.

“The doctors don’t know why his head is like that, probably because of complications during the birth but it takes time to develop,” she said.

“The helmet is holding his head in place and leaving space at the back so it will grow properly.”

The shape of newborn baby’s heads can be affected by external forces because they have malleable skulls.

Flat head syndrome, or positional plagiocephaly, is often caused by a baby being left to lay in the same position in their cot for too long.

Orsolya said it was better to start the treatment as soon as possible and after finding a clinic online, all the family need now is the cash.

She said it would mean the world to the family if the St Leonards community could pull together to help her son.

“It would mean a lot because we both work to help pay for it obviously but not just enough,” she said.

“He will have a nice head which is good because as it didn’t grow properly it would stay like this.

“It doesn’t look nice and I don’t want him to be bullied for it.”

The treatment would involve a new helmet which is made specially for each baby by using a 3D scan and cannot be reused.

So far £207 has been donated to the fundraising website for Nathan’s life-changing treatment.

Orsolya is concerned though because she expected more money to have been raised by now.

She is part of a support group and other parents had little trouble fundraising for the treatment for their children.

“I don’t have much hope as somehow it doesn’t seem like it’s working very well for us because it’s not got much money on it which is surprising,” she said.

“Some of the parents are the same and they have their £2,000 in two weeks so I expected that that would happen with us.”

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