Raising awareness of Prader Willi Syndrome

Teresa Hills Liaison Manager New Directions and Amber Rudd MP for Hastings and Rye with residents of New Directions at Drallim
Teresa Hills Liaison Manager New Directions and Amber Rudd MP for Hastings and Rye with residents of New Directions at Drallim
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AN EVENT to raise awareness of Prader Willi Syndrome was held at Drallim Industries on the Ponswood Industrial Estate.

Drallim offer work placements to residents of New Directions giving valuable work experience for adults with Prader Willi Syndrome.

The event on November 15 was attended by Hastings MP Amber Rudd and Susan Passmore, CEO of the Prader Willi Syndrome Association UK, who came down from the charity’s offices in Derby.

Prader Willi Syndrome is a genetic condition, symptoms of which include restricted growth, learning difficulties and excessive appetite.

New Directions is a company which specialises in supporting adults with Prader Willi Syndrome within its five residential homes in Hastings, St Leonards and Robertsbridge, and a supported living scheme in St Leonards.

New Directions currently has work placements with Drallim, Bausch and Lomb, and DVS on the Ponswood Industrial Estate, as well as at Holden and Co solicitors, Travis Perkins, ETC Sussex, St Michael’s Hospice charity shop and Little Common Primary School.

It is hoped that more work experience placements can be sought from other businesses within the Hastings area.

Also on November 15, an evening event took place at Trattoria Italiana in Bexhill, as part of the awareness day.

There were families from as far afield as Kent and Surrey in attendance for the evening of discussion of the very rare syndrome.

A raffle was held at the end of the evening in which a total of £465 was raised for the Prader Willi Syndrome Association UK, including a £100 donation from the Rotary Club of Hastings.

Businesses interested in the possibility of offering a work placement to someone with Prader Willi Syndrome, or to find out more about the work of New Directions, should visit www.praderwillisyndrome.org.uk.

To make a donation to the Prader Willi Syndrome Association via New Directions visitwww.justgiving.com/Nina-Holyer or text donation to 70070 reference NHND66.