A CHARITY football match between Little Common FC and Skinners Sheds raised several hundred pounds last Saturday (May 3) in aid of a young Hastings girl who suffers from a rare genetic condition.
Chloe Smith, seven, was diagnosed with the genetic condition mucopolysaccharide disease (MPS 6) when she was just two and her family are busy raising money for the MPS Society UK.
The match was organised by two of Chloe’s uncles, Stepehen Robinson, of Skinners Sheds, and Darren Horsman, Little Common FC team manager, along with the team’s co-manager Paul Field.
MPS6, which is also known as Maroteaux-Lamy syndrome, named after the two French physicians who discovered it, is caused by a lack of an enzyme called N-acetylgalactosamine 4-sulfatase. Symptoms include clouded corneas, deafness, and pain caused by compressed or traumatised nerves and nerve roots.
Terri Parsons, Chloe’s mum, said: “The match went really well. Chloe was really happy, It made her day. She loved it and had a fantastic time, especially getting her photograph taken with the boys! We raised £331, which is not bad for a day!”
In 2013, children and staff at Churchwood School, where Chloe attends, raised almost £200 for the cause and this Summer, Terri will taking the ultimate plunge and parachuting in order to raise even more money for the charity close to her heart.
Terri added: “I will be doing it when the weather clears and the money will be added to what has already been raised. It’s my dream to do it and it is great to do it for a charity that’s from my own heart. My daughter has given me the inspiration.”