FAMILY and friends of a toddler born with a debilitating illness are holding a charity fundraising event.
Sophie Hall, who is 15 months old, was born with cystic fibrosis, which affects her lungs and digestive system causing them to become clogged with thick mucus.
The toddler, of Park Drive, has to take medication daily and will have to for the rest of her life.
So her mum Kim and her friend Sarah Luff decided to hold a charity family fun day in aid of the Cystic Fibrosis (CF) Trust, which will be on Sunday, June 12 at Azur, Marina Pavilion, St Leonards from 1pm.
Mrs Hall said: “Sophie is a true inspiration to all she meets and always has a big smile. Her big brother Isaac is particularly close to her and they are amazing siblings.
“At the moment Sophie is doing really well, but sadly she won’t always find life as comfortable as it is right now. While there is considerable research taking place all the time, nobody can guarantee how the condition will affect her.
“We have to live each day to the fullest and hope and pray that gene trials currently taking place will prove successful. Raising this money for the CF Trust will help fund invaluable research and gives families a reason to be able to look to the future. We would like to say a huge thank you to all our fantastic variety acts who have agreed to take part and everyone who has supported the event so far.”
Around 8,500 people in the UK have cystic fibrosis and five babies a week are born with it.
June’s fundraiser will feature cheerleaders, street dancers, puppeteers, a gymnastics display, a butterfly ballet, and a grand raffle.
There will be also be an auction of prizes donated by local individuals and businesses, as well as an auction of slaves from Hastings and Bexhill Rugby Club. Tickets are £15 and £7.50 for under 12s. The cost for a family-of-four is £40 and under 2s are free. This includes a BBQ meal by Azur.
To buy tickets call Kim Hall 07733 858789, Sarah Luff 07773 534909 or Azur on 0845 8121066 or email email@example.com.
Optician Rhodri Luff is running the Hastings Half Marathon on Sunday for the CF Trust. To sponsor him go to http://uk.virginmoneygiving.com/team/cffundraisershastings. Sophie’s dad Darren is also taking part in the race. Log onto http://uk.virginmoneygiving.com/kimanddarren to sponsor him.